This morning we received a schedule from Children's Hospital listing the procedures Josiah would have over the next 3 weeks. Later, we received a phone call from Dr. Cotin's nurse...when she heard we'd been contacted by someone from Children's Hospital to schedule the surgery on Monday, she was shocked and basically said that no one should've contacted us. For several hours we waited while she discussed with other doctors (Dr. Cotin wasn't in today), and then she called back with the news that they are not ready to proceed with Josiah's surgery at this point. Apparently there was some confusion between departments there and we shouldn't have been called to arrange an appointment yet.
Here's an explanation that Shelly wrote on www.caringbridge.org/visit/josiahsnead:
"WE ARE NOT GOING TO OHIO THIS WEEK. And I am officially OFF the roller coaster ride! We're not exactly sure why the surgeon and his scheduler jumped the gun, but the other people on Josiah's team would like to get rid on one "red flag" before prodeeding with surgery.The red flag was this: Hemosiderins were found in the washes done by the pulmonologist during the bronchoscopy last week. This could be a normal thing, as 50% of preemies have these. BUT, in light of Josiah's oxygen requirements, they want to make sure it's not signs of pulmonary hypertension (caused by possible hemmoraging in the lungs). The O2 needs could very well be explained by altitude, but its better to get everything checked out and treated BEFORE this major surgery occurs. " We're still not perfectly clear on what this means, and I think the pulmonary hypertension could cause possible hemorrhaging in the lungs (not vice-versa), so we're again waiting. Josiah will have an echocardiogram (ECG) on Friday morning in Albuquerque and the results will be sent to Cincinnati. Janet, Dr. Cotin's nurse, thinks it will be normal and said they'll then be able to schedule us...if it's not, it's an issue that will have to be resolved before they do Josiah's surgery, as we don't want to risk the hemorrhaging. When Shelly asked what it would take to resolve the issue if it exists, Janet didn't provide a direct answer, so we're not sure.
So now we're praying for a normal ECG on Friday, continued wisdom for his doctors and nurses, and genuine trust in God's timing. Several friends have commented along the lines of "God's timing is perfect" after hearing the news today...it's one thing to hear it, say it myself, and even know that it's true...but sometimes it's a much more difficult thing to BELIEVE it. Not sure if that makes sense or suggests a lack of faith, it's just sometimes a struggle (at least for me) to LIVE it. However, my struggle in that area doesn't change God's faithfulness, and that's comforting. Pastor Martin actually spoke last Sunday about how Abram was a friend of God and yet even he expressed doubts when God told him he would be the father of many nations (and how that would take place). One of his points was that we can be honest with God when it comes to doubts, frustrations, etc. He made us, knows us, and loves us, so it wouldn't make sense to do otherwise. I just thought of that sermon now as I'm writing this...I wish I'd remembered it earlier today, but at least it's an unexpected blessing from writing this blog (which I really didn't feel like doing tonight).
One cool thing about today: So many of you expressed your excitement and joy for us based on last night's news, and we appreciate you sharing in our excitement and joy. We all got a glimpse of what it will be like, and that was pretty amazing.