A late night at the end of a long day, so I (Art) will likely use this post on CaringBridg
What a great day. 1st, Josiah's bronch went well and his doctors said the airway is looking very good, so good that they removed the tube from his airway and did not replace it with a smaller tube. So, Josiah's airway is now tubeless. His doctors said the key is making it for 24 hours this way and we're approx. 14 hours of the way there, so things are looking good. However, they also again cautioned us that we are not yet out of the woods, and they'll know much more about how things are looking at the bronch on the 9th.
When Josiah was waking up after the procedure, it was pretty traumatic for him. We think it was mostly due to the new sensation of breathing without a trach and without the tube in his airway...al
About his talking, it is VERY faint, like a whisper although he's not whispering...
I am with him tonight, and thus far it's been pretty rough. Josiah cannot seem to get comfortable
We will probably be moved from PICU to a special section for airway patients tomorrow morning. After that, it's more waiting until the bronch next Wednesday.
On the adoption front, we received another photo of the kids today along with some additional health information.