Thursday, November 26, 2009
Hoping that all of you who read this have enjoyed a wonderful Thanksgiving with family and friends. Although we're spending Thanksgiving in the hospital, we have much for which to be thankful.
Josiah has been awake much of the day. He usually cries when a staff member enters the room, and always shakes his head no when asked if he needs medicine. His attending doc today said that he probably is in pain, but just doesn't want anyone coming near him, so they're giving him Tylenol every 4 hours. We've read lots of books and he's watched two movies, mainly trying to keep him comfortable and peaceful.
Good news - he is breathing so well on his own that they are slowly taking him off of the ventilator. The large tube must stay in his nose to keep the airway open and to be there in case it collapses, so they don't have to intubate through the airway sites they just repaired. They have turned him down to 24% (I think 21% oxygen is considered "room air"), and he stil has something going on with the ventilator that provides a push to open his lungs. They will slowly wean him off of this and if he can tolerate it, this will allow him to be able to sit up more, etc. (although right now he gets upset if we even have to adjust his pillows to change his position every few hours).